to ANYONE around me that i have an incurable disease??? THEY THINK that if i change my ‘habits’ it will cure me? DUMBASSES!! NO MATTER how many links i send to them to help them understand, they STILL THINK, that the disease is all up to me, and that i can make the ‘changes’ necessary to turm it around!! once again…DUMBASSES!!! SELFISH DUMBASSES!!!!!
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Sometimes people are hesitant to accept a fact as a fact… for a variety of reasons. Regardless of whether they accept it or not, it shouldn’t change you. Only you walk in your shoes.
You are so much more than any disease. There are probably things you wish to do… and can do.
ty dis~ u r 1 reason y i am here…… didnt no u were on i reached out to duke plz…u r always welcome to join me ~~~~~u really help me ty….i have so much inside that NOONE knows, i MEAN NO-ONE….i cant put it all here, ppl wud get upset, the whole dam site would b about me! ha! jk~~~my dady died wen i was 3yrs old frm brain anyuresm.. downhill ever since…..
Me! I can barely help myself unless it’s to a drink.
You should not waste your time trying to persuade people to understand. It’s not a case that they won’t, they simply can’t. I will give you an example. I have colitis and my dad and especially my nan always blame it on my diet or lifestyle. No matter how many times I explain to them that no cause has been identified and it’s an auto immune disease they seem to have an explanation that has eluded the medical profession who I am sure would like their insight.
It’s not their fault. My dad works in a factory and wasnt educated, my nan is from India so she believes in all that superstitious nonsense. I’m surprised she hasn’t asked my to go to the temple and prayer.
The point is, people lack understanding. It’s not something you should resent them for or punish yourself by expecting more than they can give.
I’m sorry maibri… People here seem very understanding. I don’t think anybody would mind. Being able to unload your thoughts is one of the values of this site.
I know you’ve had challenges… I just don’t want to see you define yourself by the tough situations you’ve faced or are facing. It’s easy to make a list of what has affected you… and re-creating that list can start a cycle of affecting you all over again. I understand what has happened in my life… and I have a list… I just know that if I don’t try to move forward from the list, good things won’t happen. I struggle with that everyday… but one day I hope to leave the list behind.
My comment is awaiting moderation.
Mine is awaiting moderation, too.
ty duke~ been crying for hours…i no where this is heading..noone on here can make me stop what i am doing…but it helps to no i am not alone , not being judged……
ty dis, i need u n duke, how long i dont no……
good site…keeping an eye on me eh? all comments awaiting moderation? how safe r we on here? i better shut up….
thoughts lead to…….etc.
I’m not sure what the moderation algorithm is… I know links can activate it… not sure what else. It might be random or a technical snafu…
well right now, my trust is at a low….bouncin off the bottom agin
this daily struggle will never stop…never.
It is very easy to allow yourself to become upset by the things other people say and do. Sometimes they dont intend to hurt your feelings, they may not have the skills to communicate effectively. When that happens you need to take a step back and assess the situation. We all get upset, especially me so it’s a perfectly natural reaction. You just have to have a system to cope with it. For example you can post on here and I will always tell you my true opinion whether it is right or wrong. When we were kids my sister used to have a fascination with labels, the ones you get on clothes. So her coping strategy was when she felt scared or upset she would find a label and hold onto it until the feeling passed. Strange, but it worked for her.
If I defined myself by the words and assessments of others, I probably wouldn’t have it as far as I have… There have been people who solidly supported me along the way… and other people who did nothing that got in the way. I harbor nothing bad to those who hindered… Human nature is what it is. Ultimately, the ball is in your court. At the end of the day, you are wearing your shoes… Nobody else.
TY DUKE N DIS .. I JUS CAUGHT UP TO UR COMMENTS, WAS READY TO SHUT THE SITE DOWN N B ON MY OWN LIKE IM USED TO oops sry caps..
duke… since the copd diag in jan i have drank every day, beer…im so upset right now, one of these days……sooner than later i hope.
dis~ y is it that i never, until i met u, that i have had someone, who dosent even know me, make me feel im ok?
No matter what happens, maibri, you will be okay. You’ve made it this far through persistence and drive… by not taking the easy route. That’s something that I pray for myself… that the persistence and drive continues.
Maibri..that’s where I am at as well. I suffer from an incurable disease, and have to hear this crap from people like ‘feel better’ and ‘hope you get better soon’ while I know damn well i never get better. See, these people don’t walk in our bodies, they live in their own little bubble and are clueless when it comes to intractable pain and/or incurable illnesses. HOpe to hear back from you