Sitting in the kitchen wheelchair, putting together a bowl of cereal, trying to reach the cereal and bowl and milk without having to get up. Trying not to drop anything.
Making it out to the car.
Using both steel canes to make it there.
Driving to the store and hoping there is one of those motorized wheelchair carts readily available. (Without one, I can’t go in and shop, since I can’t remain standing for that long).
Returning home, backing into the driveway so I am as close as possible to the porch.
Getting out, grabbing both steel canes plus whatever groceries I bought, struggling to make it up the porch steps without falling.
Making it back to the kitchen wheelchair, putting groceries away.
Catching my breath before I finally get to lay down in bed again.
I was born with equinovarus in my feet/ankles.
If it had been properly diagnosed in childhood, they could have done surgery to fix it.
It’s too far gone to fix now, plus I have other physical issues that complicate the issue.
It gets worse as I grow older.
Also I am prone to osteomalacia, which is a form of brittle bones.
And there is degenerative arthritis.
And peripheral venous edema.
So the best that could be done is to have some leg braces custom-made for me, plus an assortment of canes and wheelchair and walker, depending on what the circumstances require.
Sometimes I don’t cope, which is why I’m here at SP. 😀
But usually I just try remembering to keep things as simple as I can.
And I enjoy creative things like composing music, making artwork, journaling, playing in the local symphony, and whatever else keeps my mind active. My outer shell is always broken, but my inner self can *sometimes* be okay.
15 comments
Getting up in the morning.
Not if you were in Big Pine Key with me… 🙂
I hate to say it, but I doubt that I will ever see Big Pine again.
Many things. Feeling overheated 24/7 is my main one though
Is there a solution to this problem?
Daily struggles:
Getting out of bed and putting on the leg braces.
Struggling to the bathroom and the kitchen.
Sitting in the kitchen wheelchair, putting together a bowl of cereal, trying to reach the cereal and bowl and milk without having to get up. Trying not to drop anything.
Making it out to the car.
Using both steel canes to make it there.
Driving to the store and hoping there is one of those motorized wheelchair carts readily available. (Without one, I can’t go in and shop, since I can’t remain standing for that long).
Returning home, backing into the driveway so I am as close as possible to the porch.
Getting out, grabbing both steel canes plus whatever groceries I bought, struggling to make it up the porch steps without falling.
Making it back to the kitchen wheelchair, putting groceries away.
Catching my breath before I finally get to lay down in bed again.
What is the name of your health problem?
I was born with equinovarus in my feet/ankles.
If it had been properly diagnosed in childhood, they could have done surgery to fix it.
It’s too far gone to fix now, plus I have other physical issues that complicate the issue.
It gets worse as I grow older.
Also I am prone to osteomalacia, which is a form of brittle bones.
And there is degenerative arthritis.
And peripheral venous edema.
So the best that could be done is to have some leg braces custom-made for me, plus an assortment of canes and wheelchair and walker, depending on what the circumstances require.
I’m sorry for all. How do you cope?
Sometimes I don’t cope, which is why I’m here at SP. 😀
But usually I just try remembering to keep things as simple as I can.
And I enjoy creative things like composing music, making artwork, journaling, playing in the local symphony, and whatever else keeps my mind active. My outer shell is always broken, but my inner self can *sometimes* be okay.
I admire your determination, adaptability and patience. You’re amazing!
Yeah, getting out of bed. Holding on to my existence. It is so exhausting mentally
Being alive is a daily struggle
Being on the sunny side of the dirt. That’s my problem…..
getting up in the morning, staying awake after i get up, talking to people, basically living in general.