I have had an undiagnosed illness for 7 months now. My symptoms are too overwhelming to indicate here however it is of a medical nature not psychological. This illness has left me mostly bedridden, unable to leave the house except for dr’s appointments and unable to drive and struggling to walk.  I’m in my mid 30’s and had everything going for me. I mean everything. I considered my life to be almost perfect. I am a lover of all life has to offer and now all i can do is look out my bedroom window and see everyone else and everything living. My new doctor seems certain that he will be able to pinpoint what is making me so ill. I’ve been to so many specialists and have had so many tests that i feel like an alien being probed. I feel like whatever is wrong with me will hardly have quick fix and since i have going so long without a diagnosis my body is damaged for life. I don’t want to live if i’m going to be like this forever but i literally have no way out. I envy those who have gone peacfully to the other side. I live through my dreams and the best ones are those in which i have someone who understands that can take the pain away. All i can do for now is hold on in this isolation.
4 comments
I’m sorry honey; ones 30s is a horrible age to be that sick and bedridden, I mean your still soo very young. I hope your new doctor can find out what is making you so terribly ill; and perhaps even find a cure, my heart goes out to you. If I believed in god I would pray for you, but all I can do is give you my best wishes… and I really do hope you get better sometime soon. =)
Whats the symptoms that bothers you the most…
Im like you….i would like a reason for the way i feel….
List a few…if you can. X
Thanks Shelly.
Hi Jacky, I’m sorry you are sick too. What are your symptoms? I am most scared by my loss of appetite. I can only eat once the hunger pains of starvation take over usually in the evening. I use to weigh 125+. Now i range between 112 and 115. I often force feed myself and it makes me want to puke. My tummy is either sunken in or very bloated and it’s painful. I also have heart palpitations when i shower, even with cool water. It makes me feel like i’m going to pass out. I am often disoriented as if i’m not getting enough oxygen or blood flow to my brain. My muscles have atrophied even when i try to walk i have severe inflammation in my soft tissues. I am very weak and have tremors when i try to get up and do anything. I use to be optomistic that i would get better but the more time that has gone on i feel like i’m going to suffer for a very very long time. I never knew it was possible to suffer this much. Sleep is my only comfort. At least i can sleep.
It amazes me how they cant find anything wrong with you.
Ive not been well for years….not as bad as you but doc thinks ive got fibromyalgia now. Because you didnt put any of your symptoms down ….it was a bit of a stab in the dark really but i know the fibro website i go on amazed me with the wide range of symptoms people have with fibromyalgia. Some people have waited 10 years for a diagnoses….they are always being told theres nothing wrong with them as theres no real test for it. The main symptom is pain and about 50 other symptoms that people can have. Its one of those illness that is so vague and people can suffer to different degrees.
Like i said …it was just a thought. when i read your post. Im sure they must find something for you soon…you hang on in there and keep pestering the docs till they come up with something.X