I don’t have anything new to say and I’m not looking for any advice… I feel like I’m posting too much. I just needed to write.
Hope everyone is doing okay today. Feel free to skip over my post and rant about it in the comments if you’re not.
Earlier my mum said she feels like she hardly sees me, because she’s been out a lot. I said it isn’t ideal that I’m spending so much time in the house, but it’s okay, I’m fine… I’m starting to realise how severely it’s affecting me.
It has its upsides. I’ve been in more pain lately, but it often disappears while I’m resting. I get so confused when there are lots of voices around me or people ask me questions. When I’m alone I can think more clearly.
But it’s making my depression so much worse. Tomorrow I’m going out with family and I’m already worrying about how painful it’ll be or, even if I’m okay at the time, how damaging it’ll be afterwards. Physically I’ve taken a huge downturn lately, and my mental state is following with each passing day. Because my sleeping patterns have gone awry I fell asleep this afternoon, and woke up feeling more depressed. When I had enough energy to start standing up, I fell back down and cried and cried. It’s never for long… usually depression keeps me from crying. Ever since the urge to self-harm returned several months ago, it’s been hitting me suddenly and quite randomly. One of the reasons I did it was so I could cry again. I’m horrified at the thought of doing it again, because it would be a sign that I’m really losing control over my mind.
It’s time that I made the effort to look into the cures I was thinking of trying for ME/CFS and depression. I don’t like to admit it but one of the reasons I haven’t is that I’m terrified of it not having any effect on the ME. The other reason is that I don’t like talking about depression or anxiety in RL, especially to strangers. Meanwhile I should go to see my GP about the nausea I’ve experienced in the last couple of months. I’m worried that under-eating could be making me more ill. At the same time I dislike going to the surgery and it’d be another aspect of my life to try to understand and adapt to. It’s only a small thing, but even the thought is exhausting.
I don’t have the motivation to do much of anything at the moment. I stopped doing most of my hobbies because of the problems they caused me physically, but now I’m barely doing any smaller tasks either. I keep trying to read and write, even though they’re intensely difficult and can be exhausting. I’ve been trying to read short articles online, and I give up on most of them after a while. Part of it is dizziness, but most of it is actually understanding and retaining the information. I can’t bear my brain in its current state – the forgetfulness, the pain, the confusion. Sleep is the only relief from it.
I knew I’d be alone all evening and I thought again about phoning Samaritans. I couldn’t do it. I thought I might email them instead. Waiting for their emails in the past gave me a temporary anchor, and I think I could use one right now. More and more often, people don’t seem real to me anymore. Nothing does. I’m floating away from reality and I need something to pull me down.
I feel so guilty for being the person that I am right now. The fear that I could die without having any sense of reality, any comprehension of what I’m doing, is something I hoped would stay dormant until it faded entirely. Even if nothing else in the world mattered to me, I could never let my parents experience the sudden death of their child. I would never, ever do that to them. But there are times that my existence seems to fade away and all I can see is death. It’s the only desire, the only reality, left. It’s a force pulling on me when everything else that matters, no matter how much I try to remember it and keep it alive, fades until it hardly exists.
Today I want to scream at my mind to wake up, wake up… I would rather feel crippling pain than complete dissociation from everything I hold dear. I wish that I only had to hold those things close to me and they’d become part of my reality again. I feel like I’m descending into madness. I try to breathe, to step away from it, and sometimes I can wash some of it away… for a few precious moments.
Severe depression is ridiculously determined. I’m determined too. But I feel like I’m slipping away.
Maybe getting back into the outside air will leave it more subdued. Maybe if I keep trying, I’ll wake up. Hopefully.
To the guy who thinks I look like a chicken (haha π ), if you’re reading this: thank you for the emails.
12 comments
Trix,
Good luck, you look like a chicken? i love chicken! BAK! BAK! BAK!
@rocketman, yes, I do. I’ve been blessed.
There is nothing for you to feel guilty about Trix. This isn’t the you you chose; it was handed to you. And for as awful as it is, you’ve been handling it as best you can, with more grace than I could imagine.
When it comes to the articles, if you told me what they are or what you are looking for I could read them for you and summarize them if you wanted, that way it’d be less work for you. I know from basic googling that any one treatment is not guaranteed to work, and a few of them can worsen the symptoms, but there’s got to be something out there that can improve things, even a little.
“The other reason is that I donβt like talking about depression or anxiety in RL, especially to strangers” Nobody does. But honestly in your case, especially because of how physically debilitating it is, it’s the most understandable thing in the world. I read the article SeeSmith put up yesterday, and the example of the girl in there who took her life? Of the things I so desperately wish for you, that is NOT on the list.
There’s that saying “it’s got to get a hell of a lot worse before it gets better” and it applies here, and you’re getting worse, and it hurts my heart.
Keep Trying. Keep Posting. Go see your GP even though it will be awful. Try meditating, you’ve said it’s helped a bit before. Focus on your heartbeat, your breathing, imagine the pain leaving your body a little bit with each breath. Blast some music. Anything.
Tomorrow, don’t stay on your feet, take the walking stick or the wheel chair with you. “I get so confused when there are lots of voices around me or people ask me questions” If there’s too much, have someone get a pair of noise cancelling head phones and take a break. There’s nothing wrong with doing that.
You have my love. It’s not much of an anchor, but it’s there.
And I know you said you’re not looking for any advice but (blows raspberry) You got it Anywayyy…
I knew it. I knew someone would give advice. π
Thank you so much, freeroma, especially for your offer to summarise articles. That’s so, so sweet of you. I might take you up on that.
I’m keeping up with the meditation. It really isn’t easy. Today I felt like my heart was going to burst out of my chest. But I know it’s been helping, so I’ll make a point of carrying on with it.
Tomorrow I’m going out with my dad. The only problem with going places with him is that I used to help him walk. He doesn’t need as much help now but it still helps him to take an arm and use a walking stick. So I usually walk with him. But on the upside, because he has problems walking too, once we’ve found somewhere to stop we have a lovely long time sitting together. He keeps me laughing, so it can only help my mood.
I should get a pair of those. That’s a great idea.
Thank you. You have my love too. Abundantly. π
Anytime. π I’m glad you can enjoy time with your dad, that sounds sweet.
Love you sweets. I’m glad I’m not around you cause I run my mouth all the damn time and you have to hit me with a brick to shut me up but you’d be too fatigued to toss it. Eventually I would talk you to death and your mom would discover us and I’d go to prison and my cell mate would be named “Tiny” with predilections in buggery and crochet.
So you should be safe with two walls and an ocean between us. Count your blessings.
Thanks for making me laugh again. Sounds like the perfect way to die. I was trying to think of a less weird way of phrasing that, but it’s inherently creepy… too bad.
I love you too.
I completely get what you mention. Before going to check some of my supposed illnesses (i say supposed because i’ve never gotten a straight definitive answer about some of them), i was terrified because i knew there would be consequences, more complications, etc. The thing is, if you’re already having a hard time as it is, it might be worth the shot. If the risk is higher than the reward… yup, i’d think about it, but if it’s the opposite? it’s kind of a no brainer. Even if someone thinks you resemble a chicken, chickens can kick your ass on the zelda games, and tbh you do seem like a really strong person so… yeah, you’ll figure out what to do.
My day? bad eating and singing. Those two destroy me completely but i have to do them once in a while or i go insane. Tomorrow is going to be hell physically… but well, i did enjoy it so it’s worth it, hehe.
Thanks, Mf. There is a risk with the alternative treatment, but it is worth the shot. There’s no questioning it really. I just have some (mostly irrational) fears holding me back.
Glad you enjoyed it. π
@Trix,
Best of luck with the medical treatment. You have incredible resilience, I hope they can find some therapy that can allow you to live at least a somewhat normal life. I have no understanding of your illness but it’s clear it’s very debilitating.
No you’re not going crazy-please don’t think that way. Yes getting out-if you are physically able to, would be good for you-if you have some RL friends to chat/hang out with, that can also help a lot.
It’s all about managing one problem at a time. Likewise, I tend to get depressed if my sleep cycle is out of wack, especially if I sleep at noon or the evening. Best to try to be disciplined with that.
Thanks, newname. Yeah, the sleep thing really causes problems. Usually I’m really careful about it but the problems started as soon as I started getting more ill – probably partly down to the illness, but also because I’m resting so much and I spend so much time awake in bed. I always turn it around eventually. I’ll keep that in mind, to manage one problem at a time. Thanks. π