a year and a half ago on my birthday I was diagnosed with Guillian-Barre loss the use of one leg. a month later I relapsed and loss the use of the other leg. Then another relapse and became extremely weak, diagnosis was then changed to CIDP.
It was at this point that they discovered a liasion on my pelvus but they decided to hold off and get my legs working first. Remember what I just wrote here.
So over the course of May through August I was hospitalized for the entire time, I went bonkers. In August I lost my home and was forced to mov to a single level apartment where I could use a wheelchair to get around. At this point my family thought I was faking, that I was doing this for sympathy and that it was a pity party….
All through the fall and winter I continued to get weaker and still no answers, Ifelt like I was being put on the back burner by both family and doctors. In May of this year I wentto the Mayo Clinic in Rochester in hopes of getting answers.
The Mayo Clinic told me to plan on being there for 3-5 days 4 and a half weeks later I left still without any answers. 3 days after returning home I received a call from the Mayo and with a Diagnosis. Come to find out I was misdiagnosed for the last year. You know that liasion I talked about…..That is the cause of all my prolems and the damage is permanent.
Now they started Radiation in hopes of stopping the progression, but I continue toget worse. I have a port in my chest and on 50 pills a day plus transfusions every 21 days.
I just have to figure out now how to use what I have to to end my life.
2 comments
Damn I really feel for you, that sucks 🙁 but maybe death can bring a much needed release?
put your hope in jesus he took it for you on the cross he can bring you through