I have chronic pain. It’s curable, but doctors don’t know shit and don’t want to invest time to research it more. They don’t take me seriously, i always have to fight to try a treatment or keep getting my medication (painkillers but also special creams etc)
I am tired of this. My immune system is fucked up too, i could actually say i feel like i have all symptoms of HIV. I don’t have HIV.
I don’t have a cool condition like CANCER or ARTHRITIS. No, my doctors even called mine psychosomatic.. which it isn’t. It’s only like.. 30% psychosomatic. The rest is physical. Real.
I don’t wanna keep living. Not like this
I WANT MY LIFE BACK
i lost all. i lost my love. i lost the ability to do anything, work or study, enjoy my life… etc.
i can do nothing, and be almost free of pain. or i try to live, every day in strong pain.
It’s all not fair. I just can’t keep going like this. I am so tired of fighting. People should fucking shower me with help, they do when they hear one of the known conditions. But mine? They just tell me it’s in my head. It’s not..
So many times i was right, but people don’t listen to me, they don’t give me what i NEED. And so many times in the end it was obvious i was right, but what for if i just lose anyways? What good is being right for when you know nobody believes you, nobody listens and you just lose?
If just people would take me seriously and understand my pain, and all other things that i go through, If doctors would just take me seriously like they would take a cancer patient seriously. I might not be where i am today. I probably very much likely would not be suffering so much. Just because i had to listen to others, because they forced THEIR opinions and beliefs upon me… i am paying for it all.
I have nobody to talk to anymore because i just annoy them with my complaints. There’s nothing i can do but wait inbetween appointments. There’s nothing to help me
5 comments
First, my heart goes out to you! I could have written 90% of your post myself, as we share many common experiences: chronic pain, dealing with doctors (and doctors NOT LISTENING to what we need – and I feel we know our own bodies better than anybody, and it baffles me as to why most doctors give such little credence to what patients say about THEIR OWN BODIES and what’s happening to them and what they feel they need to heal), losing friends, feeling angry about wanting our lives back, being told many of the symptoms are ‘in your head’.
I too am in the same boat as you in that there’s no one to help me. I’ve tried for so long and nothing improves, nothing changes for the better. It’s all so frustrating and so soul-killing, especially when it’s gone on for decades (as it has in my case) and life has dwindled down to spending every day merely coping as best I can with all my physical issues, and surfing the internet and watching movies. The ‘friends’ I had years ago (and I never had many at any time of my life as I’ve always been such an introvert and shy) have drifted away and the few times I try to make new friends, it never pans out. I don’t know how old you are, but at my age (late 40s) it’s tough to make friends especially when I have so little in common w/people my age — no kids, no career, no nothing. I don’t have family, really, not any that live near me or that call me…not even my own sister. Anyway, didn’t mean to start a tangent about my problems.
I just wanted to let you know I relate to so much of what you wrote. I feel very alone, and hopeless, and so tired of trying only to be disappointed time and time again.
I’m new to using these forums but I think you can message me here? If so, and if youd like to, please do. I won’t consider you ‘annoying’ or that you’re complaining — because I get it. I know what living this way is like. You aren’t alone.
Ok it seems if i go on my own post and hover over your avatar the hyperlink just immediately vanishes, i don’t even have time to click on it… but if i go on other sites i can click on their avatars and get the little box with whether i want to go to their profile or not…
Ehm.. click on my profile? Message me there? Idk because i can’t access your profile page
Hell yeah i would like to message you. But it seems whoever programmed this website commited suicide… (sry for the pun but it’s really bad… my messages don’t ever load and i have to check my post to see replies.. ). Why is there no Hyperlink to your profile in your comment? O.o (can we resurrect the programmer please?)
I I know what u guys mean. docs are pieces of shit. i have many illnesses and they do shit to help me. Even if u had arthritis they wouldn’t help since i have it and they don’t care.that’s a shocker. Any of u can email if u want NPolychuk@yahoo.com
My brother had been saying the same thing, nothing was able to diagnose his problem. I lost my brother to suicide 2 months back. It is unimaginable for us to think how much he suffered. We never thought he would do like this. We were never taking his situation seriously. 🙁