I’m loosing hearing in my right ear due to something called Meniere’s disease. I haven’t been diagnosed yet but i have had symptoms of this disease for 2 years. I thought they where nothing and I eventually got used to it and ignored it. I treated it like if it was just normal. I would get dizzy and fall over,faint, hear ringing in my ear, get bad headaches, and a weird pressure in my ear. The dizziness was a regular kind of daily thing. The ear problems came 1 or 2 times a month. But when the ear pains would come everything else would get a million times worse.
Then a few days ago i woke up with the inability to hear in my right ear. I told my mom she took me to the doctors. He barely even listened to my symptoms. He asked,”What brings you here today?” I said,”I have been having ear problems and…” “Oh, ok let me have a look. Ear infection. Here’s a prescription for antibiotic’s. Bye.” So I decided to do some research and came to the conclusion that I have Meniere’s disease (or something with all the same symptoms).
Everyone keep’s telling me not to worry and that its probably nothing. But it’s my body and I know something is wrong and I know its something serious I can feel it. The thing is I feel really de-socialized since this happened. I mean I really don’t have any friends but i somehow have maintain a semi what social life and if i’m home I am usually always texting at least 1 person. But since I told my 3 friends about my problem they haven’t really talked to me. When I told Jasmine she said not to worry it will go away and not to jump to conclusions. I told her I’m not jumping to conclusions I just know somethings wrong.She replied saying I’m overly dramatic and seeking attention by wanting to go deaf. I told her I would never make up something like this and If I did go deaf I wouldn’t really mind it’s not the end of the world. Then she said i’m not gonna go deaf and i said i know my own body. That was 3 days ago and we haven’t talked since.
When I told my friend Bethanie she didn’t argue she said if I really feel I’m going to loose my hearing then maybe I am. But then I asked if she would learn sign for me and she never answered. Then Michael,a guy who used to be my best friend and is now trying to come back into my life texted me me. He asked me what was new and I told him about my ear. He said it’ll go away. I said maybe. And he said it will. Then I said how do you know. And he said stop being so negative. I said I know my on body And he never answered. That’s pretty much all of my friends and they are all ignoring me.
I don’t know if I should text my ex. We haven’t talked in weeks because we are on a break. We never met before so I don’t really think I should tell him. I feel like everyone just thinks I’m lying for attention. But I’m not. Why would I pretend to be sick for 2 years then pretend to go deaf. I’m currently on anti biotics and I have an apt in 2 weeks. I just feel like no one cares. I feel like I have no one to talk to. Not even my doctor listens. I really want to be taken seriously. I don’t want the doctor to just say it’ll go away. I don’t want my friends to ignore me and think i’m pretending. Lately I have been just wishing I would go completely deaf in my right ear so that the pain would go away. Recurring inner ear infections don’t fee nice. I just feel so alone
3 comments
Hey there,
You mentioned that your doctor prescribed you some antibiotics and you will see him in a check up a couple of weeks from now. Well, even if you are sure that it isn’t an infection, just take the antibiotics for the time being to at least clear the assumption that it isn’t an infection. I am sure that if you tell your doctor that the antibitiotics didn’t work, that you have looked into your problem, and you are pretty sure it’s Meniere’s disease, he will at least listen to you and will try to help you by referring you to otolaryngologist. There are a lot of diseases out there and your doctor is just trying to rule out the obvious first. If he doesn’t give a crap, then go find another doctor. Some doctors really don’t give a damn about their patients and are just practicing medicine for the money, but some doctors out there really do care and I am telling you this from personal experience.
About your friends, I feel like I have been doing the same to my friends too. They kind of try to help me, but I can tell that they don’t really give a crap. So I just end up pushing them away and alienating them. Just remember that you don’t revolve around their world all the time. They have their own problems as petty as they might be and they will focus of them because we are all humans.
I guess sometimes its better to deal with your issues by yourself if you can’t find people that really understand you. And this is the main reason I am in this forum, because I KNOW that all of you guys have been through the kind of crap that I have been going through and because of this, you guys can understand my pain and suffering.
It’s hard to convey feelings through text, but hey, I care. You have a legit medical issue and I hope that you get the medical attention that you deserve. If it makes you feel better, I am sure that if I were going deaf, I would be freaking out as well. So don’t take it too hard on yourself that you are losing your mind.
If you want you can talk to me through email, AIM, or even text, you can. I don’t have anybody to talk to and I could use anyone’s company. My email is alphahydrox@gmail. I can give you my other contact info by email if you want.
Take care, Antonio.
@Antonio
I do take them I have been for the past 5 day’s. They haven’t help at all.
The thing is my actual doctor wasn’t working the day of my apt so i was seen by some 100 year old man who really need to retire. When i go back to see the doc I will be seeing my actual doctor and he actually cares.
Well I understand they have problems I’m just sick of them thinking I am capable of making up such a sick story. I’m not that kind of person and they all know that.
Yea that’s why I am here too.
Thank you, it just suck’s having such a huge weight on my shoulder and dealing with it alone. I just never thought I would be in this situation especially not alone.
Ok i will email you.
Hello!
This is an important response that I hope you’re reading.
I found this post because I am a survivor of a very specific (benign) brain tumor known as an “acoustic neuroma.”
Please don’t be alarmed before you Google it and worry — but your symptoms are exactly what I went through before I had a PROPER doctor diagnose it.
Because your post is recent, I’m guessing you haven’t figured this out yet. I went through the SAME stuff, wondering what was going on.
If you’re reading this, please do the following:
Find a professional hearing doctor, take a hearing test and confirm the loss of hearing.
Then, as I’m going to assume they’ll advise, get an MRI to confirm. I ignored all my own symptoms (everything you mentioned) and was floored when I discovered that I had been lost without knowing that this was what was going on with me.
I hope this isn’t alarming, and if I’m wrong, then I apologize — but I can’t help but share this in case it will help in figuring out why all these things are happening.
If you need more advice, please don’t hesitate to respond and I will guide you through the process. Not to jump to conclusions, but I was you 5 years ago and want to help just in case.
And this is important: find the BEST doctor you can. I can’t believe the “antibiotics” remedy! Mention an “acoustic neuroma” and please don’t be scared. The symptoms are too close to be a coincidence.
And don’t freak out until you figure out what’s going on, physically. See doctors — good ones — and get to the bottom of everything you wrote. Trust me — finality helps so much.
Hope this helps.