I already have a time, place, and means ready to go. I told myself I didn’t want to make any irreversible decisions without thinking long and hard about them, so I set up a two month moratorium which ends in less than 24 hours. This is it. This post will be my last attempt to gather contrary opinions: convince me not to go through with it, if you think it is more rational for me to stay alive.
I had a decent childhood and I was doing well in school. I was happily married. Then, one day about three years ago, I developed a migraine. It hasn’t stopped since. For three years I have had continuous pain, like nails being driven into my eyes. It has spread across my arms to my fingers and down one leg to my toes. I cannot work. I cannot exercise. I can barely walk if I use a cane. I cannot study. I cannot think. I cannot function. My wife accused me of being lazy and giving up, so she left. That made me sad, but honestly, these days I almost don’t notice. The pain takes up everything.
I became a full-time patient for a while, going from specialist to specialist and test to test. People from Johns Hopkins and the Mayo Clinic have done their examinations and run their tests. I’ve tried changing everything in my life, from my work and home to my diet. I’ve also tried acupuncture, reiki, and what I could only call a crazy witch doctor. Believe me when I say that I’ve exhausted East and West. Medication barely makes a difference, and I’ve gotten nothing even close to a proper diagnosis. Maybe there IS no diagnosis.
The neurologists throw up their hands and say that my pain comes from depression, so I won’t feel better until I get my depression under control. My therapist and psychiatrist say that my depression is caused by my pain, and that it will not lift until I get my pain under control. Ironically, Catch-22 used to be my favorite book.
Over the course of the last three years, I have gradually transformed from a person into a machine for trying to avoid pain. This avoidance is my full time occupation, and my job performance is greatly wanting.
And it makes me so angry, because it just feels so unfair. I followed the rules. I don’t drink, and I never took drugs. I don’t even drink soda or coffee. I paid my taxes and obeyed the law. I was a vegetarian and I did yoga. I was peaceful, and patient. I was nice to everyone, even on the Internet. I even saved myself for marriage! Can you believe that? How many men actually do that, in this day and age?
I look out there and I see drug addicts who hold on to a job and muddle through. I see alcoholics coming to class drunk and still managing to pass. I see philandering and abusive men whose wives nevertheless refuse to give up on them. But I can’t hold on to a job or my marriage. What did I do to deserve this?
I have no hope and I see no prospects for the future. Every day is a mix of hideous pain and glum disappointment. After second and third opinions, I’m no closer to a diagnosis, and even if I had one, would there be a cure for this? There is no way to know.
I cannot rationalize continued living. I cannot justify continuing to waste other people’s time and money on further pointless tests (it might mostly be the insurance company’s money, but that’s still other people). I think of no reason to keep taking up space, and using up money and natural resources, to keep myself alive just so that I can spend every day on a futile effort to avoid pain.
Convince me otherwise, if you can.
6 comments
I knew a guy who had myeletic encephalitis. The symptoms of what you have sounds like it could be ME. Have you had this test? Not that it makes much difference, there’s no cure. I’m sorry for your situation, it sounds pretty horrible but life really isn’t fair, so it doesn’t matter how good a person you are, sometimes shitty things happy to people who don’t deserve them and aint nothing can be done about that.
It sounds like you want to be convinced, but sorry, I cannot affirm your wishes. If you want to live or die, that’s your decision and you cannot trick someone else into making that decision for you. I will say 2 things though: First, it sounds like you want to be convinced, and if that’s the case, I think you still want to live. Second, it also sounds like you’re a good person, and if that’s the case, there’s probably someone who could love you besides your ex wife.
Do what you wish with this information. Best of luck to you.
I’m also so sorry to hear about your unrelenting pain.. Argh I’m like one day, it is your decision and i have to respect that. I suppose for me its always the toss up between hoping it might get better, and staying for that. Or truely knowing you don’t want to stay just for hope.
But I also think there is some hope left in you.. I also wish you all the best
Like you said, you had it all. That is better than most of the people on this earth.. especially on this website where we screwed up in our teenager years and lived a miserable life into our adulthood. *cough* me. With that said, reminisce on your good years as you push through this tough time, we are in 2015 man, there is a treatment for what you have, just gotta dig deeper. Play some computer games to get your mind out of reality for a bit or something while you eat healthy and do your treatments. You’d be surprised on how better you will feel enjoying a lil bit of cyberspace if your physical reality isnt working for ya.
One more thing, I blazed Marijuana at 18 for the first time during college.. loved it, got addicted and ruined my entire life, i am 31… but in your case… I believe it would probably save your life dude.. look into it.
wow, kaze, you surprise me!
brainspur, what a horrible, horrible nightmare. I’m shaking my head over it. I wish I had some advice, I don’t. I have always thought that unrelenting pain (and/or total paralysis) would be the worse form of torture and I could never continue to live in that situation. How you’ve gone on for 3 years w/ this shows your incredible drive, determination, and will to live.
I can understand completely how tired of it all you must be. So I can’t convince you to want to keep on. The only thing I can think to say, is the migraine came out of nowhere one day..so maybe it will leave out of nowhere some day. But waiting for that day? I don’t know if I could.
I’m in horrible emotional pain that is driving me over the edge. But personally, to me, physical pain is worse. I cannot stand any sort of physical pain. You are very strong.
While you still have fight in you, which you obviously do, please don’t give up. Keep searching doctors, etc. Keep checking the internet. Keep talking to ppl. There’s got to be something, somewhere, that can help you.
I will imagine freedom from this nightmare for you.
I’m very sorry for the pain you are in. I agree with the above commenter in that it does sound as if you wish to be convinced, which may be a sign that you want to live. I wish I could offer some suggestions, but unfortunately I have nothing seeing as you already said you have exhausted numerous methods. I wish you the best and hope you are able to find a way to continue living comfortably.
L4Y
(L4Y@cogeco.ca)