man im so sick of this

Im not meaning to lay sympathy on you, but empathy. I know what you’re going through. And it sux big time. I don’t have scoliosis, I don’t know what my problem is, but its more likely to be GSP -genetic spastic paraplegia. My fathers side of the family has it & I think i have the first signs of it.
It really sux to wake up day after day to pain, and hell to get through the day and forget about trying to get to sleep! I have pain in my lower back, raidiating out to my hips & down my legs. I wake everyday to stabbing pain & numb hands and feet. If I stand for too long, my legs give out. If I sit for too long, my hands go numb!
But back to you…
What pain relieving methods have you tried? Ive tried everything I can think of & every pain medication my doctor has prescribed don’t work. The next step up is to take oxys, which I don’t want to do, since I’ll sleep all day & wake with a killer headache ( I’ve tried one before).
My biggest problem was getting the docs to believe me, since I had no proof of GSP & physical typical signs. I found a free app called ‘Catch My Pain’ & it allows you to document exactly your pain, where, how bad, symptoms, almost everything & you can export a chart that you can show the doc. The best part is that there is now a community blog that you can chat to other people suffering similar or the same pain. Its been a big help to me, maybe you can find some kinship there too?

Pain is not just a physical ailment, its mental as well. It chips away at your mental stability & brings you down in the most horrible way. {Hugz}