Able to do less & less.  Was dx with SCA type 6 in 2002.  Can not take care of myself anymore.  Tired of the struggle.  My  last attempt was very very close.  Obviously not close  enough.
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Sorry to hear that my friend. I just googled your disease and it sounds horrible. =(
I understand why you want to do this. I hope you find the peace you’re looking for.
It sucks that medical professionals don’t guide us through this process and just let us suffer more than need be.